Thursday, October 27, 2011

Tiiiimmmeeee is not on my side....

I suck at posting lately. Total suckage.
We had a heck of a time with Lily getting over that surgery. It was awful. 2 full weeks of pain and an entire week to get her to poop. It was exhausting for all parties involved. Lots of crying. For all parties involved.
She is basically back in action, yet we put her on Zonegran about 6 weeks ago and she is finally on full dose and the poor kids appetite is cashed. Like maybe some pudding and applesauce. If it weren't for carnation instant breakfast and pedisure I don't think she would have survived. She had to have lost at least 5 lbs and on a tiny frame already that is too much. Get this, she is again wearing the size 8's handed down to Andi Jane and Andi Jane is wearing Lily's 10's. What is going on here? I don't like this reversal. It was hard enough watching Andi Jane walk and talk by the age of 1 when Lily at 3 at the time still couldn't do either. It was hard when Andi totally surpassed Lily's shoe size and now clothes. I'm sure it happens with typical sisters, I'm what 3" taller than my "big" sister and always have been a size or two bigger so I know it happens, but it still reminds me that nothing is normal here. Sometimes it's nice to just pretend in my head our family is typical, forgetting seizures, and wheelchairs of course, but now Andi Jane is just full on growing bigger and 2 years younger. I just don't like it. I remember as a kid wishing on every birthday cake for my brother to be "typical" or to walk and talk like us and every year it didn't happen. I just worry that I am still doing that to this day just over my kid. My child whom I accept fully as she is, but sometimes that yearning for "normal" is overpowering even to a wise woman who understands her lot in life. Although I do understand come teenage years I may be grateful for just one typical girl ;)
Things are crazy, every day we have something else going on. Halloween is coming up then of course the holidays so I'm fairly certain time will become more and more of a luxury.
Speaking of Halloween I have yet to figure Lily out and Andrew and I will be attending an adult party (we haven't done one since before Lily) on Saturday and we haven't a clue as what to be. Tonight is date night supposed to be getting costumes, yet he said we're attending an HOA meeting instead. My knight in shinning armor.
I have so much to share but they all deserve a post of their own not just a jambalaya of words and thoughts (now I'm hungry) so I am going to challenge myself to remember myself and my passion and get back to what I love doing. I deserve some writing time.
Promise to try harder....

Monday, October 17, 2011

WWPD?

WWYD? WWJD? WWPD? The last one is what would Phil do. Phil, you know, Phil. Phil from Modern Family. Phil. We all love Phil and some of us, maybe those of us who have watched the show from the day it premiered, the day you anxiously awaited after seeing the commercial for the show showing Cam and Mitch on an airplane and someone said look at the cream puff and Cam yelled about that being offensive and then looked at baby Lily with a cream puff. Oh the show that tops all the other comedies. Modern Family. I heart the entire cast. I want to marry Cam, if he'd have me. I love that show. Ok back to Phil moments. If you love the show like we do, you yourself have had those moments and laugh. Or cringe. I recently had one of those moments.
With Lily's surgery and fall break I've had no dates with my husband, no breaks with my friends. If I am at work it is with Lily. Like I go potty and stare at a dog and two kids. No breaks.
So we find out some amazing news that a good friend of ours doesn't have cancer after a lot of testing. It was hold your breath waiting then when she said she was all clear it was time to celebrate! Our plan was to go to a bar just a mile or two from home, my friend Kim picked me up and it was time to celebrate! Kim shows up and I am not ready of course. She waits for me, then I kiss my family goodbye and get ready to have a drink or two or five. Just kidding. Just a few. So we are on the road our typical banter of what's going on, I get a text and I start responding, when I look up I see two cars collide. I don't think we even said a word, Kim just pulled over and I grabbed my phone. I dial 911 and start telling them about the accident. Kim takes off to the car where there is a young teenager jumping up and down in a panic because her mom is pinned in the car and it has caught on fire. I am telling the 911 operator to hurry up, the car is on fire! She is screaming! The lady was screaming! Kim is trying to get this lady out of the car, passerby's are throwing milk, juice, soda on the fire, someone had a fire extinguisher that hardly did anything. And I stood there on the phone to 911. I look over at Kim hugging this frightened young girl. I see Kim checking on the passenger in the other car. I see her across the way talking to others. I was on the phone with 911 still. Finally fire truck comes and gets out the fire. We don't think the woman was burned but her legs were crushed and it took an hour for them to cut her out of the car. The police officer comes over to me and asks me what happened. I said the car came out of nowhere. I don't know what happened. I tried to tell him then I say I was texting go find my friend Kim, she was the one driving. He goes and finds her and talks to her and comes back to me to say "you were right, your friend was a much better witness". "Yup" I told him, then proceeded to tell him this is really taking away from our girls night and he sounded like he wanted to be invited. Silly officer. When I finally got reunited with Kim I hugged her and told her how proud I was of her and how much I loved her. She was a freaking hero and I just called 911. And yes this was awful and scary and how am I relating this to a Phil moment? I don't know, I just think Phil would picture himself a hero in situations. I know I thought I would have acted faster. The car was on fire. My instinct was not to run into a burning car. I would have loved to have been a hero but I stood there not knowing what to do with my hands. It was a Phil moment. Or maybe a Mitchell moment. But whose ever moment it was, it was really mine and it was just funny, later, and not at all for the scary accident and the poor woman with crushed legs and her poor daughter who saw something really freaky, but for me it was like... c'mon Kim that's all you got? A cell phone?

Monday, October 10, 2011

Still recovering

Well I post Lily's recovery on Saturday to have her wake up on Sunday with a 102.5 fever and her just miserable. The on call Dr (yes you better believe I called him when he was on the golf course) said that is was normal and they get worse before better. Well he wasn't kidding! Last week was worse than the first week. She took the tylenol with codeine every 4 hours until this past Saturday and even then she took it am and pm. The fever lasted until Monday and she had to go to work with me Monday, Tuesday and Friday (the girls are on fall break for 2 weeks). She still hardly eats and has lost a ton of weight off her tiny enough already frame. She is incredibly constipated right now and even with enemas and miralax we aren't getting anywhere. If she doesn't explode soon we will be at the dr. She screams every once in a while and I know from Andi's experience the cramps that come and go are excruciating. :(
She is at work with me right now watching netflixs being a sweet but uncomfortable girl.
So glad I have the next two days off. I love working, but when the kids are out of school it is more work getting to work than actual work.
Sigh. So pray for poop. We are hoping to get away this weekend by visiting my niece Ariel in Flagstaff (she attends NAU). We are excited for a little getaway as long as Lily's bowels comply.

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